Utterback Family

The coolest member of the Sintz Family is Isaac. So, Isaac is thirteen years old. A quote from his mom, “He has Dravet syndrome. It’s a rare neurological disorder. He was born with the gene mutation. He’s mentally about 2. We never thought he’d make it this long. He was on hospice 2 yrs ago. He chose to stay awhile. Now he’s back on hospice and he crashed harder and faster this time. He has untreatable epilepsy, autism, autonomic dysfunction, and stage 2 kidney disease. Some days he’s up and going and does well, for him. Then he crashes and can sleep for days to weeks at a time.”